NEWS & EVENTS

“Collaborative Visit to SIHRLC Karigiri for Leprosy Healthcare Dialogue”

To strengthen collaboration on leprosy prevention, treatment, and rehabilitation through discussions with healthcare experts at SIHRLC.

On May 14, 2025, the Association of People Affected by Leprosy (APAL), in collaboration with its Tamil Nadu state committee, visited the Schieffelin Institute of Health – Research and Leprosy Centre (SIHRLC) in Karigiri, Tamil Nadu. This visit was led by APAL President Maya Ranavare and Executive Member Govind Swamy. During their time at the center, they engaged in discussions with SIHRLC authorities and staff, focusing on leprosy-related healthcare services, preventive methods, and rehabilitation strategies.

Established in 1955, SIHRLC has been at the forefront of leprosy care, research, and training. The institute has significantly contributed to reducing leprosy prevalence in its service areas and has pioneered innovations such as tendon transfer surgeries for deformities and the development of Micro Cellular Rubber (MCR) footwear to prevent foot ulcers. Their comprehensive approach includes integrating leprosy services into general healthcare, conducting state-of-the-art research, and training healthcare personnel at various levels .

“Karnataka Leprosy Field Assessment and Advocacy Visits”

 To evaluate living conditions, healthcare access, and welfare gaps in leprosy colonies and advocate for sustainable improvements.

On 13^th May 2025, The Association of People Affected by Leprosy (APAL) continues its active engagement across states to address the pressing concerns of persons affected by leprosy. In Karnataka, APAL’s State Committee has been working closely with local communities to advocate for better living conditions, healthcare services, and social inclusion. As part of these ongoing efforts, Mr. Sriram, the State Coordinator for Karnataka, recently conducted field visits to several leprosy colonies in the northern region of the state, including Raichur Leprosy Colony, Yadagiri Leprosy Colony, and Bidar Leprosy Colony.

During these visits, Mr. Sriram engaged with residents and community leaders to understand their current living conditions and challenges. A key focus of the visit was to assess the status of house construction projects, which remain incomplete or delayed in many colonies, leaving families in vulnerable and unsafe housing. He also gathered detailed information regarding the availability and accessibility of healthcare services, noting gaps in treatment, rehabilitation, and the lack of consistent medical support for chronic conditions related to leprosy.

The visits further highlighted a range of other issues faced by residents, including lack of livelihood opportunities, poor sanitation infrastructure, and limited access to government welfare schemes. Mr. Sriram emphasized the urgent need for coordinated action involving local authorities, health departments, and welfare agencies to implement sustainable solutions. The APAL State Committee in Karnataka is now preparing a detailed report based on these findings to advocate for targeted interventions and policy support, aiming to improve the quality of life for persons affected by leprosy in these underserved colonies.

“Welfare Scheme Implementation and Monitoring by District Social Security Cell”

 To ensure effective delivery of disability pensions and social security benefits to families of persons affected by leprosy through coordinated administrative efforts.

On 13^th May 2025, Mr. Ramavarai Sah, Joint Secretary, District Social Security Cell, Purbi Champaran, Motihari, is a dedicated and diligent officer known for his commitment to public welfare mainly families of persons affected by leprosy.

In his role, he ensures the effective implementation and monitoring of various social security schemes across the district. Mr. Sah has played an instrumental role in coordinating with local development officers to streamline the data collection and verification process for beneficiaries under welfare schemes like the Bihar State Disability Pension and other related programs.

His recent efforts in ensuring the timely reporting and resolution of issues related to beneficiary disability pensions have been widely appreciated. Through his leadership and administrative skills, he continues to contribute significantly to the upliftment of marginalised communities in the region.

“Recognition of Leadership Excellence – Seva Samarpan Samman Award to Mr. Jawahar Ram Paswan”Vice President of APAL
To honour and celebrate the unwavering dedication and advocacy of Mr. Paswan for the rights and rehabilitation of people affected by leprosy.

On 11^th May 2025, Heartfelt Congratulations to Mr. Jawahar Ram Paswan, Vice President of APAL! A huge round of applause and our sincerest congratulations to Mr. Jawahar Ram Paswan, the respected Vice President of APAL India, on being conferred with the prestigious Seva Samarpan Samman by the Pratik Sangharsh Foundation. This esteemed award stands as a proud recognition of his unwavering dedication, tireless advocacy, and lifelong commitment to the upliftment, dignity, and rehabilitation of people affected by leprosy.

Mr. Paswan has long been a beacon of hope and an inspiring leader, working selflessly to champion the rights of marginalised communities, ensuring their voices are heard and their needs are addressed. His compassionate leadership continues to inspire countless individuals across the country who strive for justice and equality.

The State Committee of APAL in Jharkhand takes immense pride in this well-deserved recognition. We extend our warmest congratulations and best wishes to Shri Jawahar Ram Paswan Ji. May he continue to be a guiding light for the movement and bring about meaningful, lasting change in the lives of those he serves with such devotion.

“Water Supply Advocacy and Installation Drive – Meghalaya”
Ensuring access to clean water by advocating with the PHE Department for pipeline extension to leprosy colonies, promoting health, dignity, and community empowerment.

On 9^th May 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Meghalaya took a proactive step towards improving the living conditions of residents in leprosy colonies by addressing the long-standing issue of inadequate water supply. Recognizing the hardships faced by the colony residents, the State Committee formally approached the Public Health Engineering (PHE) Department with a request to extend a water pipeline connection from the main lines to the colonies. This initiative was part of APAL’s broader mission to advocate for the rights and dignity of people affected by leprosy.

In a commendable display of responsiveness and collaboration, the PHE Department positively acknowledged the request and extended its support by providing the necessary water pipes and fittings. The installation work was carried out jointly by the residents of the colonies and members of the APAL State Committee, reflecting a strong sense of community ownership and cooperation.

The successful implementation of this project has brought significant relief to the residents, ensuring access to clean and reliable water – a basic yet vital necessity. The APAL State Committee and the residents of the leprosy colonies extend their heartfelt gratitude to the PHE Department for their timely intervention and support. This partnership stands as a positive example of how community-led advocacy and responsive governance can together bring about meaningful change.

“Self-Care Kit and Soaking Tub Distribution Program in Chhattisgarh”

On 8^th May 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Chhattisgarh, in collaboration with a generous local donor, Mr. Anil Dhiwar, recently organized a meaningful distribution program for persons affected by leprosy. This impactful initiative took place at one of the leprosy colonies in the state, where Mr. Dhiwar personally distributed self-care kits and bathing tubs to the residents. These essential items are a vital part of daily care for those affected by leprosy, helping them manage their health and hygiene with dignity.

The colony residents and the APAL State Committee deeply appreciate the kind-hearted efforts and invaluable support extended by Mr. Anil Dhiwar. His contribution not only provided much-needed material support but also sent a strong message of solidarity and compassion to a community often marginalised and overlooked.

Special thanks to APAL’s State Coordinator in Chhattisgarh, Syam Bhai, for her active contribution in the distribution.

“Rapid Response and Rehabilitation Support for Rain-Damaged Leprosy Colony”

On 8^th May 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Andhra Pradesh recently met with the District Collector of East Godavari to address the urgent situation in one of the leprosy colonies in Bhimavaram that had been severely damaged due to heavy rains. The torrential downpour had caused significant hardship for the residents, damaging homes, infrastructure, and disrupting daily life. The committee submitted a detailed memorandum highlighting the needs and the immediate action required to restore normalcy in the affected colony areas.

In a prompt and commendable response, the District Collector took swift action upon receiving the memorandum. Understanding the urgency of the situation, the Collector immediately directed concerned department officials to visit the colony and assess the damage. Within a short period, the district administration mobilised resources and initiated the reconstruction and repair work. The damaged areas were effectively restored, and essential services were brought back to normal, ensuring the safety and dignity of the residents.

APAL’s Treasurer Mr. Prakash Done’s timely intervention and the proactive approach of the District Collector and the district staff were deeply appreciated by the APAL State Committee and the colony residents. Their sincere efforts brought much-needed relief and support to a marginalised and vulnerable community. APAL’s Andhra Pradesh State Committee, along with the residents of the colony, extend their heartfelt thanks to the District Collector and the entire team for their dedication, compassion, and quick action in resolving the crisis.

“Empowering Santhosh Nagar Leprosy Colony through Local Philanthropy”

On 5th May 2025 (Monday), APAL’s State Committee in Telangana, in collaboration with local donor Madam Saraswathi, generously provided tent materials worth ₹75,000 to the residents of Santhosh Nagar Leprosy Colony. This support was extended after a request was made to Madam Saraswathi through the Lions Club, showcasing the power of community connections and local philanthropy in addressing the needs of marginalised groups. The tent materials were a much-needed resource for the colony and a symbol of collective solidarity.

To mark this generous contribution and to acknowledge the ongoing efforts of leaders and donors, a “Lions International Success Meet” was organised at the Nampally Exhibition Grounds. Maniyada Ramesh and other colony leaders were also present to express their gratitude. During the program, heartfelt thanks were extended to Madam Saraswathi for her valuable contribution, reinforcing the importance of such collaborations in empowering people affected by leprosy.

On 5th May 2025, the Jharkhand State Committee of APAL collaborated with local health authorities to organize a meaningful distribution program at the Bokaro Leprosy Colony. In this initiative, MCR (Micro Cellular Rubber) slippers were distributed to individuals affected by leprosy by the District Leprosy Prevention Officer. These specialised slippers are crucial for protecting the insensitive feet of people affected by leprosy, helping to prevent injuries and ulcers that could lead to further complications.

Madhusudan Tiwari, a member of APALi’s state committee in Jharkhand, was present at the event and expressed gratitude for the initiative. The event not only provided much-needed footwear but also symbolised a growing awareness and commitment to ensuring better health outcomes and social inclusion for the leprosy-affected community in Jharkhand.

In a focused advocacy effort, APAL’s Joint Secretary, Mr. Ramavarai Sah, accompanied by members of APAL’s State Committee in Bihar and State Coordinator Mr. Ramesh Prasad, visited the office of the Samajik Suraksha Nideshalay in Patna. The team met with concerned officials to raise pressing issues impacting persons affected by leprosy, particularly regarding the irregularities and inadequacy of disability pensions.

During the discussion, the APAL delegation stressed the urgent need to increase the existing disability pension, emphasizing that the current amount is insufficient to support even basic living expenses. They also drew attention to the alarming issue of sudden stoppage or non-credit of pensions for several eligible individuals—without any prior notice or explanation. These disruptions have placed an added burden on an already marginalized population.

The team appealed for immediate intervention to re-sanction the pensions of those affected and to ensure timely disbursement moving forward. They also recommended strengthening social security mechanisms and making service delivery more inclusive and accessible for persons affected by leprosy.

The department officials responded positively and assured the APAL team of prompt action to resolve the concerns raised.