NEWS & EVENTS
The APAL State Committee in Bihar, in coordination with Mr. Ramavarai Sah, Joint Secretary of APAL, has undertaken a commendable initiative to support persons affected by leprosy who are facing mobility challenges due to disabilities caused by the disease
“Tricycle Distribution Program for Leprosy-Affected Persons in Raxaul, Bihar”
To enhance mobility and dignity of persons affected by leprosy through the distribution of 26 tricycles.
On 24th May 2025, The APAL State Committee in Bihar, in coordination with Mr. Ramavarai Sah, Joint Secretary of APAL, has undertaken a commendable initiative to support persons affected by leprosy who are facing mobility challenges due to disabilities caused by the disease. In a recent program held at the Government Block in Raxaul, Bihar, a total of 26 tricycles were distributed to individuals living with leprosy-related disabilities. This initiative marks a significant step in empowering affected persons with better mobility and dignity in their daily lives.
APAL expresses deep gratitude to the Government of Bihar for extending its invaluable support and services to persons affected by leprosy. The distribution of mobility aids like tricycles addresses one of the most pressing challenges this marginalised community faces—physical movement and access to basic services. APAL extends special thanks to its State Committee in Bihar and to Mr. Ramavarai Sah for his rights-based approach and tireless efforts in advocating for the needs of the leprosy-affected community. His active contribution is a testament to APAL’s ongoing commitment to inclusivity, empowerment, and social justice for persons affected by leprosy.
(APAL), along with the APAL State Committee members from Tamil Nadu, visited the Mother Leprosy Patient Welfare Society located in Karigiri, Tamil Nadu.
Visit to Mother Leprosy Patient Welfare Society, Karigiri
To assess living conditions and access to healthcare and social protection for leprosy-affected residents through direct community engagement
On 15th May 2025, Mrs. Maya Ranavare, the President of the Association of People Affected by Leprosy (APAL), along with the APAL State Committee members from Tamil Nadu, visited the Mother Leprosy Patient Welfare Society located in Karigiri, Tamil Nadu. The primary purpose of this visit was to closely observe the lives of people affected by leprosy residing in the colony, understand their daily struggles, and assess their access to essential healthcare and social protection services.
During the visit, the APAL team engaged in direct conversations with the residents of the colony. They discussed the current living conditions of the community members, their access to regular medical care, and the availability and reach of government and non-government social welfare schemes. The team carefully listened to the concerns raised by the residents and noted their pressing needs, especially in terms of healthcare infrastructure, financial support, and rehabilitation services. This interaction was part of APAL’s ongoing commitment to ensuring the dignity, inclusion, and well-being of people affected by leprosy across the country.
The Association of People Affected by leprosy, APAL’s President Maya Ranavare, successfully conducted a State Committee Meeting at the Schieffelin Institute of Health – Research and Leprosy Centre (SIHRLC) in Karigiri, Tamil Nadu.
APAL Tamil Nadu State Committee Meeting at SIHRLC Karigiri
To deliberate on disability pensions, social entitlements, healthcare access, and infrastructure needs for persons affected by leprosy.
On 15th May 2025, The Association of People Affected by leprosy, APAL’s President Maya Ranavare, successfully conducted a State Committee Meeting at the Schieffelin Institute of Health – Research and Leprosy Centre (SIHRLC) in Karigiri, Tamil Nadu. This important meeting brought together key representatives of the leprosy-affected community, along with health and social development professionals, to deliberate on critical issues faced by persons affected by leprosy and their families.
During the meeting, participants engaged in meaningful discussions centered around the urgent need to increase disability pensions and improve access to various social entitlements. The committee highlighted the financial hardship many individuals continue to face due to inadequate support and advocated for stronger policies that ensure economic security and dignity for those affected.
A significant part of the conversation also focused on the enhancement of healthcare and social protection services. The members emphasized that persons affected by leprosy must have access to continuous medical care, rehabilitation, and psychological support. In addition, the committee stressed the importance of developing youth leadership within the community to ensure a sustainable and empowered future generation.
Another key issue raised was the dire need for improved infrastructure in leprosy colonies. The participants called for better housing, sanitation, and community facilities to uplift the living conditions in these settlements. Through this State Committee Meeting, APAL reaffirmed its commitment to advocating for the rights, inclusion, and well-being of all persons affected by leprosy.
APAL’s State Committee Visit to the Governor’s House
”APAL Meghalaya State Committee Visit to Governor’s House”
To advocate for increased pensions and improved welfare for persons affected by leprosy through direct engagement with state authorities.
APAL’s State Committee Visit to the Governor’s House – 15/05/2025
On the 15th of May 2025, members of the Association of Persons Affected by Leprosy (APAL) State Committee, Meghalaya, visited the Governor’s House in Shillong with the intention of meeting the Honourable Governor of Meghalaya, Shri C. H. Vijayashankar. The purpose of the visit was to personally share the challenges and hardships faced by persons affected by leprosy in the state, and to request for support and intervention in improving their living conditions—particularly in the matter of increasing the monthly pension.
Although we were unable to meet the Governor due to not having a prior appointment, we were respectfully welcomed and directed to the office of the Joint Secretary within the same premises. The Joint Secretary received us warmly and gave us the opportunity to introduce our association (APAL) and explain our mission. We spoke about the discrimination, social exclusion, and economic struggles that members of our community continue to endure.
After listening to our concerns, the Joint Secretary advised us to submit a detailed written representation of our problems and needs. He assured us that our request would be forwarded to the appropriate authorities for necessary consideration and action. We were encouraged by his understanding and willingness to support our cause. The meeting concluded on a hopeful note, with a promise of follow-up and assistance to help improve the welfare and dignity of leprosy-affected persons in Meghalaya.
Association of People Affected by Leprosy (APAL), in collaboration with its Tamil Nadu state committee, visited the Schieffelin Institute of Health – Research and Leprosy Centre (SIHRLC) in Karigiri, Tamil Nadu
“Collaborative Visit to SIHRLC Karigiri for Leprosy Healthcare Dialogue”
To strengthen collaboration on leprosy prevention, treatment, and rehabilitation through discussions with healthcare experts at SIHRLC.
On May 14, 2025, the Association of People Affected by Leprosy (APAL), in collaboration with its Tamil Nadu state committee, visited the Schieffelin Institute of Health – Research and Leprosy Centre (SIHRLC) in Karigiri, Tamil Nadu. This visit was led by APAL President Maya Ranavare and Executive Member Govind Swamy. During their time at the center, they engaged in discussions with SIHRLC authorities and staff, focusing on leprosy-related healthcare services, preventive methods, and rehabilitation strategies.
Established in 1955, SIHRLC has been at the forefront of leprosy care, research, and training. The institute has significantly contributed to reducing leprosy prevalence in its service areas and has pioneered innovations such as tendon transfer surgeries for deformities and the development of Micro Cellular Rubber (MCR) footwear to prevent foot ulcers. Their comprehensive approach includes integrating leprosy services into general healthcare, conducting state-of-the-art research, and training healthcare personnel at various levels .
The Association of People Affected by Leprosy (APAL) continues its active engagement across states to address the pressing concerns of persons affected by leprosy.
“Karnataka Leprosy Field Assessment and Advocacy Visits”
To evaluate living conditions, healthcare access, and welfare gaps in leprosy colonies and advocate for sustainable improvements.
On 13th May 2025, The Association of People Affected by Leprosy (APAL) continues its active engagement across states to address the pressing concerns of persons affected by leprosy. In Karnataka, APAL’s State Committee has been working closely with local communities to advocate for better living conditions, healthcare services, and social inclusion. As part of these ongoing efforts, Mr. Sriram, the State Coordinator for Karnataka, recently conducted field visits to several leprosy colonies in the northern region of the state, including Raichur Leprosy Colony, Yadagiri Leprosy Colony, and Bidar Leprosy Colony.
During these visits, Mr. Sriram engaged with residents and community leaders to understand their current living conditions and challenges. A key focus of the visit was to assess the status of house construction projects, which remain incomplete or delayed in many colonies, leaving families in vulnerable and unsafe housing. He also gathered detailed information regarding the availability and accessibility of healthcare services, noting gaps in treatment, rehabilitation, and the lack of consistent medical support for chronic conditions related to leprosy.
The visits further highlighted a range of other issues faced by residents, including lack of livelihood opportunities, poor sanitation infrastructure, and limited access to government welfare schemes. Mr. Sriram emphasized the urgent need for coordinated action involving local authorities, health departments, and welfare agencies to implement sustainable solutions. The APAL State Committee in Karnataka is now preparing a detailed report based on these findings to advocate for targeted interventions and policy support, aiming to improve the quality of life for persons affected by leprosy in these underserved colonies.
Mr. Ramavarai Sah, Joint Secretary, District Social Security Cell, Purbi Champaran, Motihari, is a dedicated and diligent officer known for his commitment to public welfare mainly families of persons affected by leprosy.
“Welfare Scheme Implementation and Monitoring by District Social Security Cell”
To ensure effective delivery of disability pensions and social security benefits to families of persons affected by leprosy through coordinated administrative efforts.
On 13th May 2025, Mr. Ramavarai Sah, Joint Secretary, District Social Security Cell, Purbi Champaran, Motihari, is a dedicated and diligent officer known for his commitment to public welfare mainly families of persons affected by leprosy.
In his role, he ensures the effective implementation and monitoring of various social security schemes across the district. Mr. Sah has played an instrumental role in coordinating with local development officers to streamline the data collection and verification process for beneficiaries under welfare schemes like the Bihar State Disability Pension and other related programs.
His recent efforts in ensuring the timely reporting and resolution of issues related to beneficiary disability pensions have been widely appreciated. Through his leadership and administrative skills, he continues to contribute significantly to the upliftment of marginalised communities in the region.
Heartfelt Congratulations to Mr. Jawahar Ram Paswan, Vice President of APAL! A huge round of applause and our sincerest congratulations to Mr. Jawahar Ram Paswan, the respected Vice President of APAL India, on being conferred with the prestigious Seva Samarpan Samman by the Pratik Sangharsh Foundation.
“Recognition of Leadership Excellence – Seva Samarpan Samman Award to Mr. Jawahar Ram Paswan”Vice President of APAL
To honour and celebrate the unwavering dedication and advocacy of Mr. Paswan for the rights and rehabilitation of people affected by leprosy.
On 11th May 2025, Heartfelt Congratulations to Mr. Jawahar Ram Paswan, Vice President of APAL! A huge round of applause and our sincerest congratulations to Mr. Jawahar Ram Paswan, the respected Vice President of APAL India, on being conferred with the prestigious Seva Samarpan Samman by the Pratik Sangharsh Foundation. This esteemed award stands as a proud recognition of his unwavering dedication, tireless advocacy, and lifelong commitment to the upliftment, dignity, and rehabilitation of people affected by leprosy.
Mr. Paswan has long been a beacon of hope and an inspiring leader, working selflessly to champion the rights of marginalised communities, ensuring their voices are heard and their needs are addressed. His compassionate leadership continues to inspire countless individuals across the country who strive for justice and equality.
The State Committee of APAL in Jharkhand takes immense pride in this well-deserved recognition. We extend our warmest congratulations and best wishes to Shri Jawahar Ram Paswan Ji. May he continue to be a guiding light for the movement and bring about meaningful, lasting change in the lives of those he serves with such devotion.
The State Committee of the Association of People Affected by Leprosy (APAL) in Meghalaya took a proactive step towards improving the living conditions of residents in leprosy colonies by addressing the long-standing issue of inadequate water supply.
“Water Supply Advocacy and Installation Drive – Meghalaya”
Ensuring access to clean water by advocating with the PHE Department for pipeline extension to leprosy colonies, promoting health, dignity, and community empowerment.
On 9th May 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Meghalaya took a proactive step towards improving the living conditions of residents in leprosy colonies by addressing the long-standing issue of inadequate water supply. Recognizing the hardships faced by the colony residents, the State Committee formally approached the Public Health Engineering (PHE) Department with a request to extend a water pipeline connection from the main lines to the colonies. This initiative was part of APAL’s broader mission to advocate for the rights and dignity of people affected by leprosy.
In a commendable display of responsiveness and collaboration, the PHE Department positively acknowledged the request and extended its support by providing the necessary water pipes and fittings. The installation work was carried out jointly by the residents of the colonies and members of the APAL State Committee, reflecting a strong sense of community ownership and cooperation.
The successful implementation of this project has brought significant relief to the residents, ensuring access to clean and reliable water – a basic yet vital necessity. The APAL State Committee and the residents of the leprosy colonies extend their heartfelt gratitude to the PHE Department for their timely intervention and support. This partnership stands as a positive example of how community-led advocacy and responsive governance can together bring about meaningful change.
The State Committee of the Association of People Affected by Leprosy (APAL) in Chhattisgarh, in collaboration with a generous local donor, Mr. Anil Dhiwar, recently organized a meaningful distribution program for persons affected by leprosy.
“Self-Care Kit and Soaking Tub Distribution Program in Chhattisgarh”
On 8th May 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Chhattisgarh, in collaboration with a generous local donor, Mr. Anil Dhiwar, recently organized a meaningful distribution program for persons affected by leprosy. This impactful initiative took place at one of the leprosy colonies in the state, where Mr. Dhiwar personally distributed self-care kits and bathing tubs to the residents. These essential items are a vital part of daily care for those affected by leprosy, helping them manage their health and hygiene with dignity.
The colony residents and the APAL State Committee deeply appreciate the kind-hearted efforts and invaluable support extended by Mr. Anil Dhiwar. His contribution not only provided much-needed material support but also sent a strong message of solidarity and compassion to a community often marginalised and overlooked.
Special thanks to APAL’s State Coordinator in Chhattisgarh, Syam Bhai, for her active contribution in the distribution.
