NEWS & EVENTS

On 9th July 2024, The President of APAL, Maya Ranavare, accompanied by the APAL State Committee of Maharashtra, conducted a visit to Ambernath Colony in Maharashtra today. This visit constituted part of their persistent endeavours to comprehend and address the challenges encountered by individuals affected by leprosy and their families. The committee’s primary aim was to directly engage with the residents and local leaders to gain firsthand insight into the daily difficulties faced by these communities.

During the visit, Maya Ranavare and the committee members engaged in discussions with numerous residents and community leaders. They deliberated on pressing issues such as insufficient healthcare services, social stigma, and substandard living conditions. The conversations were open and underscored the residents’ urgent requirements for improved hygiene facilities, access to medical care, and educational opportunities for their children.

The committee put forth several propositions to ameliorate the living conditions in Ambernath Colony. They underscored the necessity for regular health examinations, the establishment of enhanced sanitation facilities, and the provision of clean water. Maya Ranavare also emphasized the significance of community awareness programs to mitigate the stigma associated with leprosy and to foster a more inclusive and supportive environment. The visit culminated in a commitment from APAL to sustain close collaboration with the community for the implementation of these propositions and to advocate for their rights at higher echelons of government and society.

On 8th July 2024, APAL President Maya Ranavare, accompanied by representatives from the Maharashtra Kusht Pidit Sanghatana, held a significant meeting with the Forest Officer of the Kalyan Taluka Department at the Forest Range Office in Kalyan (West). The delegation presented a memorandum addressing the critical issue of the non-renewal of the lease for the forest land adjacent to the Sainath Leprosy Center. This forest land is not only a primary habitat for the residents of the centre but also a vital resource for their daily living and sustenance.

In the memorandum submitted to the Forest Officer, Maya Ranavare and the representatives detailed the severe difficulties faced by the residents due to the lease’s non-renewal. On August 25, 2023, the Forest Department announced that they could not continue the lease on forest area no. 124/1. This decision has caused considerable distress among the residents, many of whom are leprosy patients with limited means. The memorandum highlighted the immediate need to renew the lease to prevent further inconveniences and ensure the well-being of these vulnerable individuals.

Maya Ranavare emphasized the gravity of the situation, underscoring that the forest land serves as the primary habitat for the residents of the Sainath Leprosy Center. The residents depend on this land for their shelter and basic needs, making its renewal critical for their survival. The memorandum was a heartfelt plea for urgent intervention by the Forest Officer to alleviate the suffering of the affected individuals and to provide them with the necessary habitat.

The meeting and the submission of the memorandum showcased the commitment of APAL and the Maharashtra Kusht Pidit Sanghatana to the welfare and rights of leprosy-affected individuals. By advocating for the renewal of the lease, Maya Ranavare and her team demonstrated their dedication to ensuring that the residents of the Sainath Leprosy Center continue to have a safe and secure place to live, thereby upholding their dignity and quality of life.

Today, July 7, 2024, the APAL’s state Committee in Jharkhand had the privilege of meeting Shri Dhulu Mahato, the Lok Sabha Member of Parliament representing Dhanbad. During a courteous discussion, we apprised him of the significant issues faced by the 25 leprosy colonies within the Dhanbad Lok Sabha constituency. These communities are encountering various challenges, and it was imperative to bring their predicament to the attention of our esteemed MP.

We respectfully requested Shri Mahato to visit these leprosy colonies to gain a firsthand understanding of their living conditions and the specific problems they encounter. His presence and support would be invaluable in addressing the critical needs of these marginalized communities. We are pleased to share that Shri Dhulu Mahato has assured his commitment to the cause. He affirmed that he would indeed work diligently for the welfare of the residents of these colonies, providing them with the necessary support and attention they deserve.

On 6th July 2024, Maya Ranavare, the esteemed President of the Association of People Affected by Leprosy, alongside key members of the Maharashtra Kush Pidit Sanghatana, convened a crucial meeting with Hon. Kailas Laxmanrao Shinde, Gat Leader of Group No. 6 and the Karyalaya Chief of Mahanagarpalika. The primary agenda of this meeting was to address the ongoing accommodation issues faced by leprosy patients in Maharashtra. Despite the Maharashtra Government’s resolution to allocate housing to 38 leprosy patients, several challenges have impeded the effective implementation of this mandate.

This meeting underscored the urgent need for a concerted effort to resolve the accommodation crisis faced by leprosy patients in Maharashtra. Maya Ranavare’s leadership and advocacy were pivotal in highlighting the plight of these patients and pushing for substantial reforms in the existing support schemes. The collaborative effort with the Maharashtra Kush Pidit Sanghatana aims to bring immediate and long-lasting relief to the affected individuals, ensuring they receive the dignity and care they rightfully deserve. The delegation requested expedited allocation of plots for residential projects, an increase in assistance under the Sanjay Gandhi Niradhar Yojana, and the allocation of land under the Prime Minister’s Housing Scheme, emphasizing the need for prompt action from the state government.

On 5th July 2024, In Telangana, at the community of Maulali Sanjay Gandhinagar, a significant event organized by APAL’s State Committee under the auspices of the Leprosy Society focused on the welfare of leprosy patients. Essential ulcer kits for treating and caring for leprosy ulcers were distributed to 50 individuals in need. This initiative was a collaborative effort with representatives from NTPC, specifically MR Panigrahi, and the Priyanka Leprosy Society. Project Officer Kameswara Rao played a pivotal role in organizing the event.

Dr. Indraja, a dedicated medical professional, offered her expertise and support to the beneficiaries. The event also saw the active participation of key figures from the Society of Leprosy Affected Persons (SLAP-TS), including the State Coordinator Mr. Ramesh, and B. Venkataiah. Their involvement underscored the importance of community solidarity and the collective effort required to support those affected by leprosy.

The event went beyond the distribution of ulcer kits, providing an opportunity for the colony’s residents to express their gratitude to NTPC representatives. The felicitation ceremony, led by Ramesh recognized the contributions of NTPC in supporting the leprosy-affected community. This gesture of appreciation highlighted the positive impact of collaborative efforts between corporate entities and social organizations in addressing public health challenges and improving the lives of vulnerable populations.

On June 25, 2024, the State Committee of the APAL conducted an extensive visit to various departments across Jharkhand, with a focus on critical issues and developmental projects. At the SLO office in Namkum, Ranchi, discussions were held with Ranjit Pathak, addressing concerns related to leprosy patients residing in the 58 leprosy colonies scattered throughout Jharkhand. These discussions likely encompassed the improvement of living conditions, healthcare access, and community support for the affected individuals.

Furthermore, the team interacted with officials from the Housing Department regarding the allocation of 256 newly constructed houses in Ranchi. This discourse is crucial to ensure the efficient distribution of these housing units to those in need, thereby contributing to the state’s efforts to address housing shortages and enhance living standards.

Moreover, the visit included a substantial investigation into the tender process for 64 houses in Jamtara, carried out in collaboration with officials from the Jharkhand Housing Tender Department. This initiative aims to promptly initiate construction efforts, emphasizing the commitment to timely delivery and efficient resource utilization in Jamtara. The anticipated commencement of work in Jamtara underscores the proactive approach of APAL’s State Committee in addressing housing challenges across different regions of Jharkhand, thereby advancing comprehensive development goals in the state.

APAL is thankful to Mr. Jawahar Ram Paswan Vice-President of APAL, Mr. Jainuddin State Coordinator of APAL and Mr. Madhu Sudhan Tiwari from the State Committee for their active contribution.

On June 25, 2024, significant action was taken by APAL’s State Committee in Madhya Pradesh, specifically the Sahayog Kushtha Nivaran Sangh, to address the issue of encroachment on the land of Ram Avatar Kushtha Ashram in Indore. This action was swiftly acknowledged and responded to by the local Collector, highlighting the effective coordination between the committee and administrative authorities. The Sub-Divisional Magistrate (S.D.M.) promptly intervened, issuing orders to halt the construction of a water park on the ashram’s land, assuring that legal measures would follow against the encroachers.

During this decisive operation, the Secretary of APAL, Mr. Sarang, and the State Committee team and the ashram residents actively participated. Their collective effort underscored a unified stance against encroachment, ensuring the rightful use of the ashram’s land would be restored. This event not only demonstrated the commitment of APAL and its affiliates to protecting communal assets but also showcased responsive governance under the leadership of the local administration in Madhya Pradesh.

On June 25, 2024, significant strides were made towards addressing the issue of illegal occupation and encroachment at Alvasa Leprosy Dham, Indore. I, accompanied by the ashram residents and Mr. Sarang Gayadhane, the Secretary of APAL (Association of People Affected by Leprosy), visited the Collector’s office to initiate this pivotal endeavor. The state committee presented a memorandum urging prompt action to rectify the illegal encroachments that have compromised the integrity and security of the Alvasa Leprosy Dham.

During the meeting at the Collector’s office, we stressed the urgent need for intervention to protect the rights and living conditions of the ashram residents. Illegal occupation constitutes a grave threat not only to the physical infrastructure but also to the well-being and dignity of those within this community. Our collective presence epitomized APAL’s earnest approach to such matters and our dedication to securing justice and safeguarding individuals affected by leprosy.

As we await a response from the authorities, we are optimistic that our endeavours will result in tangible measures to reclaim and uphold the sanctity of Alvasa Leprosy Dham. This action serves as a testament to the resilience and determination of our community in confronting challenges and advocating for our rights with unwavering resolve.

On 18^th June 2024, APAL’s President, Maya Ranavare, alongside Dr. Sangli, and teams from the Maharashtra Kusht Pidit Sanghatana and the Sasakawa India Leprosy Foundation, recently had a significant meeting with the newly appointed State Leprosy Officer of Maharashtra. This gathering was marked by a warm welcome and a constructive dialogue aimed at addressing the pressing issues faced by individuals affected by leprosy. Maya Ranavare, known for her unwavering dedication to leprosy advocacy, led the discussions with a focus on the current challenges impacting those affected by the disease and their communities.

During the meeting, the delegation provided a comprehensive overview of the leprosy situation in Maharashtra, highlighting the medical, social, and economic difficulties experienced by leprosy-affected individuals and their families. They underscored the urgent need for improved healthcare services, better living conditions in leprosy colonies, and enhanced social integration efforts. The conversation was candid and focused, with the representatives from the Maharashtra Kusht Pidit Sanghatana and the Sasakawa India Leprosy Foundation contributing valuable insights and data to support their requests.

The delegation made specific appeals for increased government support, including more robust healthcare infrastructure, regular medical camps, and targeted social welfare programs to uplift those living in leprosy colonies. They emphasized the importance of addressing the stigma and discrimination that continue to hinder the full societal integration of leprosy-affected individuals. The State Leprosy Officer responded positively and displayed a friendly and understanding demeanour, acknowledging the concerns raised and expressing a commitment to work collaboratively towards effective solutions.

The meeting concluded on a hopeful note, with Maya Ranavare, Kusht Pidit Sanghatana and SILF thanking the State Leprosy Officer for the receptive and empathetic response. They expressed optimism that this engagement would pave the way for tangible improvements in the lives of those affected by leprosy, fostering a more inclusive and supportive environment within the state of Maharashtra.

On 6^th June 2024, APAL’s State Committee in Gujarat, at Gandhi Leprosy Seva Sangh, in collaboration with the Government Dental College in Ahmedabad, a comprehensive dental health initiative was organized for the residents of the leprosy colony. This initiative aimed not only to educate but also to provide essential dental care. The brothers and sisters of the colony were given vital information about dental cancer, raising awareness about its symptoms, prevention, and the importance of early detection. This educational aspect was crucial in empowering the residents with knowledge that could potentially save lives.

Additionally, the event included thorough dental check-ups for all attendees. Skilled dentists from the Government Dental College conducted these examinations, ensuring that each individual received personalized attention and care. These check-ups were vital in identifying any dental issues that needed immediate or future attention, thus promoting overall oral health within the community.

As a gesture of goodwill and to encourage good dental hygiene practices, Colgate toothpaste and toothbrushes were distributed to the children in the colony. This not only brought smiles to the young faces but also equipped them with the tools necessary to maintain their oral hygiene. Such initiatives play a significant role in fostering a sense of well-being and community, highlighting the importance of regular dental care and prevention.