NEWS & EVENTS

“Rapid Response and Rehabilitation Support for Rain-Damaged Leprosy Colony”

On 8^th May 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Andhra Pradesh recently met with the District Collector of East Godavari to address the urgent situation in one of the leprosy colonies in Bhimavaram that had been severely damaged due to heavy rains. The torrential downpour had caused significant hardship for the residents, damaging homes, infrastructure, and disrupting daily life. The committee submitted a detailed memorandum highlighting the needs and the immediate action required to restore normalcy in the affected colony areas.

In a prompt and commendable response, the District Collector took swift action upon receiving the memorandum. Understanding the urgency of the situation, the Collector immediately directed concerned department officials to visit the colony and assess the damage. Within a short period, the district administration mobilised resources and initiated the reconstruction and repair work. The damaged areas were effectively restored, and essential services were brought back to normal, ensuring the safety and dignity of the residents.

APAL’s Treasurer Mr. Prakash Done’s timely intervention and the proactive approach of the District Collector and the district staff were deeply appreciated by the APAL State Committee and the colony residents. Their sincere efforts brought much-needed relief and support to a marginalised and vulnerable community. APAL’s Andhra Pradesh State Committee, along with the residents of the colony, extend their heartfelt thanks to the District Collector and the entire team for their dedication, compassion, and quick action in resolving the crisis.

“Empowering Santhosh Nagar Leprosy Colony through Local Philanthropy”

On 5th May 2025 (Monday), APAL’s State Committee in Telangana, in collaboration with local donor Madam Saraswathi, generously provided tent materials worth ₹75,000 to the residents of Santhosh Nagar Leprosy Colony. This support was extended after a request was made to Madam Saraswathi through the Lions Club, showcasing the power of community connections and local philanthropy in addressing the needs of marginalised groups. The tent materials were a much-needed resource for the colony and a symbol of collective solidarity.

To mark this generous contribution and to acknowledge the ongoing efforts of leaders and donors, a “Lions International Success Meet” was organised at the Nampally Exhibition Grounds. Maniyada Ramesh and other colony leaders were also present to express their gratitude. During the program, heartfelt thanks were extended to Madam Saraswathi for her valuable contribution, reinforcing the importance of such collaborations in empowering people affected by leprosy.

On 5th May 2025, the Jharkhand State Committee of APAL collaborated with local health authorities to organize a meaningful distribution program at the Bokaro Leprosy Colony. In this initiative, MCR (Micro Cellular Rubber) slippers were distributed to individuals affected by leprosy by the District Leprosy Prevention Officer. These specialised slippers are crucial for protecting the insensitive feet of people affected by leprosy, helping to prevent injuries and ulcers that could lead to further complications.

Madhusudan Tiwari, a member of APALi’s state committee in Jharkhand, was present at the event and expressed gratitude for the initiative. The event not only provided much-needed footwear but also symbolised a growing awareness and commitment to ensuring better health outcomes and social inclusion for the leprosy-affected community in Jharkhand.

In a focused advocacy effort, APAL’s Joint Secretary, Mr. Ramavarai Sah, accompanied by members of APAL’s State Committee in Bihar and State Coordinator Mr. Ramesh Prasad, visited the office of the Samajik Suraksha Nideshalay in Patna. The team met with concerned officials to raise pressing issues impacting persons affected by leprosy, particularly regarding the irregularities and inadequacy of disability pensions.

During the discussion, the APAL delegation stressed the urgent need to increase the existing disability pension, emphasizing that the current amount is insufficient to support even basic living expenses. They also drew attention to the alarming issue of sudden stoppage or non-credit of pensions for several eligible individuals—without any prior notice or explanation. These disruptions have placed an added burden on an already marginalized population.

The team appealed for immediate intervention to re-sanction the pensions of those affected and to ensure timely disbursement moving forward. They also recommended strengthening social security mechanisms and making service delivery more inclusive and accessible for persons affected by leprosy.

The department officials responded positively and assured the APAL team of prompt action to resolve the concerns raised.

“Inclusive Futures: APAL–NHRC Joint Consultation on Leprosy Rights”

On 1st May 2025, the APAL State Committee in Jharkhand, in collaboration with the National Human Rights Commission (NHRC), organized a pivotal meeting at the Circuit House Auditorium in Jharkhand. The session was held under the leadership of Dr. Pradeep Kumar Nayak, Special Monitor (Leprosy) from NHRC, New Delhi, and brought together a wide range of government stakeholders to deliberate on the rights and welfare of persons affected by leprosy. The meeting witnessed active participation from departments such as Health, Education, Social Security, Social Welfare, JSLPS (Jharkhand State Livelihood Promotion Society), and the Welfare Department, alongside APAL representatives and members from local leprosy ashrams. The primary focus of the dialogue was the recognition and realization of personal, social, economic, fundamental, and political rights of leprosy-affected individuals.

Dr. Pradeep Kumar Nayak passionately advocated for the complete inclusion of persons affected by leprosy into mainstream society. He underscored that every individual impacted by the disease has an equal right to dignity and opportunity, just like any other citizen. Dr. Nayak issued a clarion call to all attending departments to integrate efforts, dismantle discriminatory practices, and dispel societal myths around leprosy. He also issued specific, actionable guidelines to foster departmental coordination, with a shared vision to achieve a leprosy-free India by 2027. His address was a powerful reminder of the systemic changes needed to uphold the rights and humanity of those affected by leprosy.

Civil Surgeon Dr. Sahir Paul also addressed the audience and played a critical role in clarifying public misconceptions surrounding the disease. He explained that leprosy is a bacterial infection that can be completely cured with timely, appropriate treatment, emphasizing that it is not highly contagious. Dr. Paul reassured the gathering that all health facilities in the district are well-prepared to conduct screenings and offer necessary medical interventions. He further informed that every leprosy-affected individual in the district has now been issued a disability certificate, empowering them to access various government schemes and entitlements. This milestone reflects the district’s commitment to improving the quality of life, social security, and welfare of persons affected by leprosy.

On 27^th April 2025, The State Committee of APAL (Association of People Affected by Leprosy) in Telangana is actively engaged in addressing the pressing issues faced by persons affected by leprosy and individuals with disabilities across the state. As part of these ongoing efforts, Mr. Maniyada Ramesh, the State Coordinator of APAL Telangana, recently participated in a significant meeting at the office of the Director for Disabled Welfare. The meeting included the participation of various state-level leaders representing disability organisations, reflecting a collective commitment to improving the lives of vulnerable communities.

During the meeting, Mr. Ramesh brought attention to the critical challenges being faced by persons affected by leprosy in Telangana. He particularly emphasised the urgent need for the issuance of Unique Disability Identity (UDID) cards, access to housing schemes, and the provision of customised mobile footwear. He informed the officials that nearly 90% of persons affected by leprosy in the state are still awaiting their UDID cards, which are vital for availing of numerous government welfare schemes and entitlements. Mr. Ramesh earnestly requested the authorities to take immediate steps to resolve this long-standing issue.

The meeting was chaired by Director B. Shailaja and Chairman Veerayya, who attentively listened to the concerns raised and acknowledged the need for swift and effective solutions. The APAL State Committee remains hopeful that the Department of Disabled Welfare will act promptly to ensure that all eligible individuals affected by leprosy receive their UDID cards and other necessary support without further delay.

On 23^rd April 2025, The Association of People Affected by Leprosy (APAL) continues to play a significant role in advocating for the rights, welfare, and health of individuals affected by leprosy across India. As part of its ongoing efforts to enhance outreach and service delivery, APAL’s State Committee in Telangana recently met with the State Leprosy Officer, Dr. John Babu, at his office. The meeting focused on a critical issue that has long hindered effective leprosy control — the presence of hidden cases that remain undetected and unreported.

During the discussion, the APAL Telangana team emphasized the urgent need for a comprehensive re-survey across the state. They highlighted how updated and complete data would significantly improve strategic planning and the delivery of health services tailored to leprosy-affected individuals. Dr. John Babu responded positively to the concerns raised and acknowledged the importance of such an initiative. He expressed his willingness to collaborate closely with APAL and assured full support from the state health department. Dr. Babu also conveyed his appreciation for APAL’s work and reiterated his commitment to working together in a collaborative mode to achieve the shared goal of eliminating leprosy and addressing the needs of those affected.

On 23^rd April 2025, Team of the Association of People Affected by Leprosy (APAL), along with the APAL Telangana State Committee, recently conducted a visit to the Sivananda Rehabilitation Center located in Kukatpally, Hyderabad. During the visit, the team had the opportunity to engage in meaningful discussions with senior surgeon Dr. Ananth Reddy. Their conversation focused on the latest advancements in leprosy treatment and physiotherapy techniques, offering valuable insights to further enhance the care and rehabilitation of individuals affected by leprosy.

As part of their outreach efforts, the APAL team also facilitated the referral of a woman affected by leprosy who was in urgent need of medical attention. Thanks to the prompt and compassionate response of the Sivananda Rehabilitation Center, she was successfully admitted and is now receiving the necessary care.

APAL extends its heartfelt gratitude to the Sivananda Rehabilitation Center for their warm hospitality, responsiveness, and steadfast dedication to supporting people impacted by leprosy. This collaboration is a testament to the shared commitment towards improving health outcomes and fostering a more inclusive and supportive environment for affected communities. The visit was attended by Ms. Maya Ranavare, President of APAL; Mr. Prakash Done, Treasurer of APAL; and Mr. Maniyada Ramesh, APAL’s State Coordinator for Telangana, along with other team members

On 7^th April 2025, The State Committee of the Association of People Affected by Leprosy (APAL) in Maharashtra, in collaboration with the Maharashtra Kusht Pidit Sanghatana, has been actively working to highlight the concerns and challenges faced by people affected by leprosy in the state. As part of their advocacy efforts, the committee recently met with Madam Sana Malik, Member of the Legislative Assembly (MLA) from Trombay, Mumbai, at her office.

During this meeting, they submitted a formal memorandum addressing critical issues such as the rehabilitation of individuals living in leprosy colonies, access to government schemes, and the need for sustainable livelihood and educational opportunities for their children.

The memorandum emphasized that 28 leprosy colonies in Maharashtra still lack access to railway services, while 2 colonies are situated within forest areas. Out of these, 23 colonies are on government land, and the committee requested the MLA’s support in initiating land regularization and redevelopment efforts. The delegation also highlighted the need to include leprosy-affected individuals under the ₹6,000 per person Self-Employment Scheme, ensuring fair representation for those residing in independent colonies. Additionally, they urged for better access to quality education and higher education opportunities for children from these communities to ensure a more dignified and self-reliant future. Maya Ranavare President Apal India, Rasul Mullah and Jitendiran from the state committee and Maharashtra Kusht Pidit Sanghatana and team have participated.

On the occasion of World Health Day on 7th April 2025, APAL’s State Committee of Delhi organized a special program in Tahirpur Leprosy Colony, where MCR slippers and spectacles were distributed to persons affected by leprosy. This impactful initiative was held in collaboration with the District Leprosy Officer and the State Leprosy Officer of Delhi, aiming to promote health and well-being with a focus on mobility and vision care for the residents.

The success of the event was made possible through the dedicated efforts of Mr. Vijay Kumar, APAL’s State Coordinator, whose unwavering commitment to the welfare of the leprosy-affected community played a vital role in ensuring the program’s effectiveness and inclusivity.