On 13th November 2025, APAL’s President, Maya Ranavare, along with representatives from the Maharashtra Kusht Pidit Sanghatana, met today in Panvel, Mumbai, to discuss important matters concerning the recent government notification on leprosy. During the meeting, Advocate Manoj Bhujbal Saheb, who serves as an advisor to the Maharashtra organization, also participated and provided valuable legal insights.
The discussion focused on the government order that has been recently issued, with particular emphasis on understanding its legal implications and determining the appropriate steps to be taken. Ms. Maya Ranavare, as a woman affected by leprosy and the President of APAL, expressed several concerns and sought clarification on specific points within the notification.
She raised key questions and observations regarding the leprosy notification. One of the main issues discussed was the referral process, where patients examined by private doctors are referred to government hospitals; however, the procedures for referral and reporting remain unclear. Another concern was about unreported cases, as some patients receive treatment privately without informing authorities, resulting in underreporting and gaps in official data.
Further, there was a discussion on the role of private doctors, as it is uncertain whether they are permitted to prescribe or provide leprosy medicines. Ms. Ranavare also highlighted that notifications from public hospitals are inconsistent and require stronger coordination. Additionally, the lack of a standard operating procedure (SOP) or a sample format for reporting notified leprosy cases was noted as a major issue.
The meeting also emphasized the importance of protecting patient rights and human rights, which are currently not being effectively communicated or safeguarded. Lastly, the government instructions in the notification were found to be unclear, creating confusion among organizations and health workers. Ms. Ranavare stressed the need for better clarification and coordination between government authorities and organizations working for persons affected by leprosy.
